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Making a Decision About Cancer Treatment

Wednesday, July 24, 2013

The good news in recent years is that there are more and more types of treatment for many kinds of cancer. No longer does “one size fit all” when you are making a decision about the type of treatment you’ll receive. More good news is that increasingly people are making these decisions jointly with their health care team as a part of shared decision making.

The challenge is that having to make these complicated treatment decisions can leave people feeling overwhelmed and confused. This is because for many people there is more than one treatment choice, and each of these choices has advantages and disadvantages.

The Lung Cancer Community Speaks Out

Wednesday, July 17, 2013

During a public meeting at the Food and Drug Administration (FDA) last month, a lung cancer survivor shared her experience. When she was diagnosed years ago, the first thing her doctor said to her was, “How should we begin your smoking cessation program?”

The woman had never even been a smoker—just like one out of every five people living with lung cancer.

She then pointed out that even if she had been, 60% of people diagnosed with lung cancer have already quit smoking, and many long-time smokers became addicted when they were just teens—and for many, that was before government warnings and stricter laws on advertising

Giving Back By Sharing Your Voice Through the Cancer Experience Registry

Thursday, July 11, 2013

If sharing your cancer journey could enhance the lives of others, would you help?

I keep hearing that people who have been diagnosed with cancer want to give back. They want to “pay it forward” so that the next person who is diagnosed with their disease will have a better experience than they had. I always think to myself – how selfless! We want to give back to you, too.

There seems to be so much survey research these days. An organization asks you to answer a questionnaire and then you never hear about it again. We wanted the Cancer Experience Registry to be so much more than a survey, so we created something we call Explore Responses where you can do just that – explore the responses of other people who have been diagnosed with cancer.

Tan Expectations

Wednesday, July 10, 2013

Today the threat of skin cancer does not usually cross young peoples’ minds when they grab their towels and skip the sunscreen to lie out in the sun to get bronze skin. It is normal and very common to bring up in conversation one’s tan, and it is a compliment to hear, “Wow, you look so dark!” As a college student, I know that a nice tan is an expectation of young people during the summer months.

The media and pop culture often glamorize tan skin, encouraging young people to attain a luminous glow. However, skin cancer is a very real danger to my generation. The most aggressive form of skin cancer is melanoma. It develops when skin cells are damaged and mutate, which causes rapid skin cell growth. It is usually pigmented (typically brown or black) and can be seen on the skin. It is estimated that in 2013, 76,690 new cases of invasive melanoma will be diagnosed. Melanoma is also the most common form of cancer in young adults ages 25-29.

A focused fact finding mission: The Cancer Experience Registry

Saturday, July 6, 2013

The launch of the Cancer Support Community’s Multiple Myeloma Cancer Experience Registry is a huge step forward for all of us that have been afflicted with MM.

Thank you! Thank you! CSC and the entire team that has spent months of time developing this registry on our behalf!

Young Leaders Host Comedy Night to Benefit CS

Wednesday, June 26, 2013

We seem to have a history of hosting Comedy Night on the rainiest day of the summer. Yet again, on Thursday, June 13, 2013, it was a torrential downpour outside as the Young Leadership Council’s friends and family made their way to Greenwich Village Comedy Club. Fortunately, no amount of rain could stop this crowd. In fact, our friends were looking for tickets to the event up until show time, a true testament to the importance of our mission and the inescapable passion of the YLC. As the lights dimmed and we settled in to enjoy a night of laughs (and a surprise visit by Judah Friedlander!), Gilda Radner crossed all of our minds.

The Cancer Support Launches its Cancer Policy Institute

Wednesday, June 19, 2013

Today was a very special day for the Cancer Support Community as we launched the Cancer Policy Institute, an initiative that furthers our organization’s mission to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community.

We are excited to take this next step by advocating on behalf of all people impacted by cancer so that the voices of 13.7 million cancer survivors and their families are heard on Capitol Hill and in state and local legislatures across the country. The Cancer Policy Institute will work to move the agenda that comprehensive, quality cancer care integrates medical care and social and emotional care.

Can We Chat?

Monday, June 10, 2013

Need a local referral for a wig? Have questions to ask your health care team but just can’t seem to get the questions organized? Feeling helpless and overwhelmed by the recent diagnosis of a loved one? Want to find a local Cancer Support Community? Live Chat at the Cancer Support Helpline may be just what you need. The Cancer Support Helpline has just added an easy to use new feature that will get you connected to the help you need.

Where Do People Get Support?

Friday, June 7, 2013

As a social worker on an inpatient unit of a New York City hospital, I am reminded, on a daily basis, of just how important psychosocial support is in the lives of individuals affected by illness. Although many of my patients are fortunate to have wonderful support networks, equally as many (if not more) of my patients have very limited family/friend support. Sometimes, I even come across patients who state they do not have anyone to list as their emergency contact person. My role as the unit’s social worker is to help my patients and their families cope with and understand the various medical, psychological, and social issues related to their illness. I work with the patients, their families/friends, and the medical team to determine a safe, appropriate discharge plan. For those patients with limited or no family/friend support, I try my best to make them feel that they are not alone during their hospitalization. However, I do not continue to follow my patients once they leave the hospital. Upon discharge, patients are set up with medical follow up appointments and are referred for home care or rehabilitation, if necessary. But, where will they turn for psychosocial support?

Working Together to Make Sure No One Faces Cancer Alone

Monday, May 20, 2013

The Breakaway from Cancer partnership is all about working together as a team to help people find the vital resources they need before, during and after their cancer journey. Over the past week, the Cancer Support Community, the Prevent Cancer Foundation, the Patient Advocate Foundation and the National Coalition for Cancer Survivorship have been traveling up the coast of California following America’s biggest professional cycling race, The Amgen Tour of California.

With the help of our California Cancer Support Community affiliates this week, we’ve connected tons of people to local and national resources that can help them through the cancer experience.

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