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Joanne Buzaglo, PhD, is the Senior Vice President of Research & Training at the Cancer Support Community. She leads strategic initiatives that leverage the research capabilities of CSC’s global cancer patient support network through collaborations with patients, caregivers, advocacy organizations, academics, health economists and leaders in industry. One such initiative is the Cancer Experience Registry, an online vehicle that engages patients and caregivers to inform future priorities in research, innovative programs and health care policy.

Working to Understand the Full Impact of Stomach Cancer

Thursday, February 4, 2016

The Advisory Board grew silent as one of the caregivers told his story. It was the first meeting of the group the Cancer Support Community brought together to plan the new Stomach Cancer program for the Cancer Experience Registry.

He was young, nice looking, straight forward--but the pain and futility of his beautiful wife’s illness and death from stomach cancer was clear as he spoke. The doctors in the group listened and stressed the urgent need for new therapies to improve the prognosis, but we all came away from that meeting with a deeply increased understanding of the importance of connecting to the community of people impacted by stomach cancer (also known as gastric cancer) -- and giving them a voice.

Hearing the Patient Voice

Tuesday, December 22, 2015

At this year’s American Society of Hematology (ASH) annual meeting, Cancer Support Community’s Joanne Buzaglo presented on findings from the Cancer Experience Registry. The topic was the Multiple Myeloma Patient Experience with Financial Toxicity, a topic of increasing importance to patients who now have multiple (expensive) treatment options and who are living longer.