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Hearing the Patient Voice

Tuesday, December 22, 2015

At this year’s American Society of Hematology (ASH) annual meeting, Cancer Support Community’s Joanne Buzaglo presented on findings from the Cancer Experience Registry. The topic was the Multiple Myeloma Patient Experience with Financial Toxicity, a topic of increasing importance to patients who now have multiple (expensive) treatment options and who are living longer.

10 Things You Should Do If You are Diagnosed with Cancer

Wednesday, December 16, 2015

This week’s blog post is by Kim Thiboldeaux, CEO of the Cancer Support Community. This blog post also appears this month in the Huffington Post, and you can read more of Kim’s Huffington Post blog posts here.

What President Carter’s Announcement Teaches Us about Immunotherapy

Wednesday, December 9, 2015

This week, President Jimmy Carter announced he has been declared N.E.D (No Evidence of Disease) after undergoing treatment for metastatic melanoma, which was diagnosed in August of this year. President Carter credits this happy announcement to an immunotherapy treatment he received. Immunotherapy is a type of cancer treatment that uses the body’s own immune system to control cancer. Here’s what we know about this exciting new treatment option and how it works.

What You Need to Know When You Tell Your Kids about Cancer

Thursday, December 3, 2015

One of the most complex aspects of living with cancer involves talking about cancer with others in our lives., especially when it comes to telling children about a loved one’s cancer diagnosis and treatment. It can be hard to know what to say. What exactly should children be told? What will they understand? What is going through their heads when they hear “cancer” and what are they thinking about everything that comes with it?

It is normal to feel overwhelmed when first diagnosed or beginning treatment, and the last thing you want to deal with is having conversations you may be afraid to have. That said, children often sense that something is amiss, making these conversations inevitable. At the Cancer Support Community, our goal is to help facilitate the conversations by providing background and information to help you know what to say.

Save Some Room for #GivingTuesday

Wednesday, November 25, 2015

Winston Churchill once said, “We make a living by what we get. We make a life by what we give.” These words ring true every day, but no truer than this week as we prepare for #GivingTuesday–an annual day devoted to giving back to others. After a day spent eating and giving thanks, and two days spent shopping, this day always feels much needed–and the benefits reaped from this day grow more important every year. If you’re unfamiliar with #GivingTuesday and what it represents, learn more below and find out how you can help support the Cancer Support Community’s mission: To ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

Support by the Step – Joel’s Story of Running 4 Marathons

Wednesday, November 18, 2015

Why would anyone want to run 26.2 miles? Why would anyone want to do it four different times?! The answer to these questions can be complicated. We run because the roads and trails are there. We run because we need an outlet. We run to enjoy nature and the outdoors. We run to be with friends and family. We run to stay healthy and fit. We run for others.

Understanding the Prostate Cancer Experience

Wednesday, November 11, 2015

It seems to be accepted as “fact” that men with prostate cancer don’t want to talk about their condition. Everyone knows that guys don’t want or need emotional support—that they usually choose to go it alone. But…is that really true?

10 Tips for Caregivers

Wednesday, November 4, 2015

A cancer diagnosis can impact your whole world. But what happens when you are also a big part of someone else’s world? Cancer impacts not just the person diagnosed, but their whole network of friends, family members and loved ones can feel the effects as well. This is especially true for the person acting as caregiver.

Do Awareness Months Work?

Wednesday, October 28, 2015

Recently, a friend confessed to experiencing cancer awareness month fatigue. For weeks now, her Facebook news feed and Twitter updates were filled with one cancer reminder after the other. She felt completely overwhelmed by the sheer quantity of cancers and bombarded by the amount of related information. Given my field of work, she felt guilty about even raising the issue, but she felt compelled to ask me: “Tell me the truth, Kim. Does it make a difference? Does it actually help?”

Every Day is a Gift: The Importance of Living in the Present

Thursday, October 22, 2015

After a diagnosis there can be many changes in patterns of thinking, planning and your overall life plan. To quote Regina Brett, a New York Times bestselling author and breast cancer survivor, “When you hear the word cancer, it’s as if someone took the game of Life and tossed it in the air. All the pieces go flying. The pieces land on a new board. Everything has shifted. You don’t know where to start.” It can be easy to slip into a pattern of worry—worrying about family, worrying about friends and worrying about the future. It is also completely normal to begin to question your existence and your life path.

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