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CSC Press Releases

2017 Press Releases

The Cancer Support Community Voices Opposition to the Senate's Better Care Reconciliation Act (BCRA)

June 23, 2017

CSC announces its opposition to the Senate Better Care Reconciliation Act (BCRA). The legislation, made public after weeks of closed-door discussions, retains the most concerning provisions originally introduced in the House of Representative’s American Health Care Act (AHCA).

High Percentage of Melanoma Survivors Experience Significant Financial Burden

June 3, 2017

The Cancer Support Community (CSC) announced today the results of its study of melanoma patients as part of its Cancer Experience Registry, at the 2017 ASCO (American Society of Clinical Oncology) Annual Meeting.

Significant Percentage of Prostate Cancer Survivors Experience Treatment Regret

June 2, 2017

The Cancer Support Community (CSC) announced today the results of its study of prostate cancer patients as part of its Cancer Experience Registry, at the 2017 American Society of Clinical Oncology (ASCO) Annual Meeting.

Significant Percentage of Gastric Cancer Patients Can Be at Risk for Clinical Depression

June 1, 2017

The Cancer Support Community (CSC) announced today the results of its study of gastric cancer patients as part of its Cancer Experience Registry, at the 2017 ASCO (American Society of Clinical Oncology) Annual Meeting

CSC Supports the "Patient Experience in Research Act of 2017" (H.R. 2244) To Improve Clinical Trials

May 2, 2017

The Cancer Support Community announces its support for the bipartisan legislation, H.R. 2244, introduced by Rep. Leonard Lance (R-NJ) and Rep. Diana DeGette (D-CO) in the U.S. House of Representatives. CSC commends Congressman Lance and Congresswoman DeGette for their continued leadership and advocacy on patient protection and patient-centered legislation.

CSC Honors Vice President Joe Biden at 35th Anniversary Spring Celebration Gala

April 20, 2017

The Cancer Support Community honors Vice President Joe Biden and the former Cancer Moonshot team this evening with the Founders Award for Vision for their tireless efforts to galvanize action and improve the future for those affected by cancer.

Balancing Competing Demands puts Cancer Caregivers at High Risk for Emotional Distress

March 31, 2017

The Cancer Support Community’s Research and Training Institute developed and validated a distress screening program to identify and address social and emotional distress in cancer caregivers.

Study Shows Women, Younger People with Lung Cancer Worry More About Discrimination

March 23, 2017

Cancer Support Community research suggests different experiences with stigma among lung cancer populations.

Cancer Support Community Applauds Nomination of Scott Gottlieb as FDA Commissioner

March 13, 2017

The Cancer Support Community supports Dr. Scott Gottlieb as Commissioner of the U.S. Food and Drug Administration (FDA) and urges the Senate to vote in favor of his confirmation.

Study Shows People with Cancer Face Challenges with Access to Care

March 3, 2017

In a study presented by the Cancer Support Community today at the American Society of Clinical Oncology (ASCO) Quality Care Symposium, 68 percent of patients reported not discussing costs with their health care team prior to treatment, even though 43 percent of patients reported that their out of pocket costs were higher than expected.

Barbara Bradley Baekgaard Family Foundation and Cancer Support Community Announce Partnership to Develop Healing Spaces in Hospitals for Cancer Patients and Caregivers

February 14, 2017

The Barbara Bradley Baekgaard Family Foundation announced today its pledge of more than $500,000 to the Cancer Support Community, a nonprofit focused on the social and emotional impact of cancer, to create welcoming spaces in hospitals where cancer support groups and programs will be put in place.

2016 Press Releases

Cancer Support Community Awarded for Contributions in Oncology

Oct. 24, 2016

The Cancer Support Community was awarded last week the Annual Achievement Award of the Association of Community Cancer Centers (ACCC) for outstanding contributions nationally to cancer care and to patients with cancer.

Cancer Support Community Applauds White House in Release of Cancer Moonshot Task Force Report

Oct. 17, 2016

The Cancer Support Community was pleased to participate today in the White House’s release of the Cancer Moonshot Task Force Report, which outlines a detailed set of findings and recommendations to achieve the goals established for the Cancer Moonshot initiative earlier this year.

New Research Shows Disconnect Between Patients and Policymakers on Definition of 'Value' in Cancer Care

Sept. 29, 2016

New findings presented by the Cancer Support Community suggest that a significant proportion of patients have difficulty conceptualizing value in terms of current cost-benefit models used by policymakers.

Cancer Support Community Endorses Psychosocial Standards of Care For Children with Cancer and their Families

Sept. 8, 2016

The Cancer Support Community, an international cancer nonprofit, has endorsed the Psychosocial Standards of Care for Children with Cancer and their families that were published in a 2015 special issue of Pediatric Blood and Cancer.

Statement Regarding Death of Gene Wilder

Aug. 29, 2016

An honorary board member of the Cancer Support Community, Gene was instrumental in the 1991 founding of Gilda’s Club, named in honor of his late wife, comedienne Gilda Radner.

The Cancer Support Community Launches Program to Help Change Clinical Trial Misperception and Offer Solutions for Addressing Communication and Enrollment Challenges 

June 22, 2016

The Cancer Support Community (CSC), an international nonprofit, today announced the launch of the Frankly Speaking About Cancer Clinical Trials program, a landmark cancer education series devoted to building awareness among patients and caregivers about the importance of clinical trials as a viable treatment option.

Concerns Around Pain, Treatment Decision-Making, 'Finding Meaning" Linked to Higher Levels of Distress Among Patients At Risk for Depression

March 31, 2016

Among patients who are at risk for depression, those who indicated high concerns around pain, making a treatment decision, and ‘finding meaning’ were significantly more likely to be experiencing higher levels of distress than those who were still at risk for depression but were experiencing lower levels of distress, according to research presented today by the Cancer Support Community, an international nonprofit, at the annual meeting of the National Comprehensive Cancer Network.

Cancer Support Community Launches New Website

Feb. 12, 2016

The Cancer Support Community, an international nonprofit, has launched its new website, www.CancerSupportCommunity.org, a destination for information, tools and support to manage the full impact of cancer.

New Registry to Examine Full Impact of Stomach Cancer

Feb. 2, 2016

The Cancer Support Community (CSC) and Debbie’s Dream Foundation: Curing Stomach Cancer (DDF) launched today the Cancer Experience Registry: Stomach Cancer, an addition to the Cancer Experience Registry that will focus on people living with stomach cancer, including gastroesophageal junction (GEJ) adenocarcinoma and other cancers of the gastric tract.

2015 Press Releases

Multiple Myeloma Patients with Financial Burdens are Over Twice as Likely to be At Risk for Depression, Study Finds

12/7/15

People with multiple myeloma who are experiencing financial burdens due to their cancer situation are almost two and a half times more likely to be at risk for depression than those without financial burdens, according to data presented December 7th at the annual meeting of the American Society of Hematology (ASH) by the Cancer Support Community (CSC), an international nonprofit organization.

Prostate Cancer Experience not Fully Understood

8/18/15

The Cancer Support Community Announces new Registry detailing prostate cancer experience.

Large Majority of Patients Delegate Treatment Decisions to Physicians

7/31/15

Data released by the Cancer Support Community (CSC) at the World Congress of the International Psycho-Oncology Society (IPOS) and the American Psychosocial Oncology Society (APOS) examined the factors that are most influential when choosing a particular treatment option.

Mitch Golant Granted Position of Distinction at APOS

7/31/15

For his decades of service to the psychosocial and oncology communities, Mitch Golant, PhD, Senior Consultant of Strategic Initiatives at the Cancer Support Community (CSC), has been elected as a Fellow of the American Psychosocial Oncology Society (APOS).

Patient Experience with Chronic Lymphocytic Leukemia Not Widely Discussed

5/26/15

The Cancer Support Community tackles the CLL experience in new cancer experience registry.

Study Finds Discrepancy in "Value" Definition in Cancer Care

5/4/15

Data released today by the Cancer Support Community at the 5th Annual Conference of the Association for value-based cancer care explored the question: When considering your cancer experience, how do you define value?

Out-of-Pocket Costs for Health Care Remain Top Concern for Many, Despite Advances in Reform

3/19/15

A report released today by the Cancer Support Community found that despite advances in health care reform, out-of-pocket costs for health care remain a top concern for many people living with cancer.

Cancer Support Community and American Psychosocial Oncology Society Collaborate to Offer Expanded Emotional Support for People Affected by Cancer

3/12/15

The Cancer Support Community (CSC) and the American Psychosocial Oncology Society (APOS) announce a new partnership that expands CSC’s Cancer Support Helpline services and broadens the reach of APOS’ 12-year-old nationwide cancer counseling referral service.

Social and Emotional Needs of People with Melanoma Remain Largely Unknown

2/26/15

According to the National Cancer Institute, the number of people diagnosed with melanoma has been increasing for at least 30 years. To meet the needs of this growing population of people, the Cancer Support Community launched today a new registry for people impacted by melanoma to study the social, emotional and financial impact of this diagnosis.

Social and Emotional Needs of People Impacted by Lung Cancer Masked by Stigma

2/24/15

This project will measure the social, emotional and financial impact on people with this diagnosis, which, according to the National Cancer Institute, accounts for 13.5 percent of all cancer diagnoses in the United States.

The Impact of a Multiple Myeloma Diagnosis on Caregivers is not Understood

2/12/15

The Cancer Experience Registry expands to include registry for caregivers of people living with multiple myeloma.

Understanding the Impact of Cancer on Caregivers

2/10/15

The project, Cancer Experience Registry: Caregivers, is an expansion of CSC's Cancer Experience Registry, which, since its launch, has collected over a million data points on more than 7,500 people who have had cancer. Similar to this patient registry, the new Cancer Experience Registry: Caregivers will ask caregivers a series of questions about their experience and will connect them to a network of support.

2014 Press Releases

Patients with Cancer Feel Unprepared to Make Treatment Decisions, Study Finds

12/11/14

Data presented at the San Antonio Breast Cancer Symposium reveals gaps in treatment decision support for patients with metastatic breast cancer.

Barriers of Entry into Clinical Trials Continue, Study Finds

12/11/14

Data presented at the San Antonio Breast Cancer Symposium reveals low enrollment rates for metastatic breast cancer trials despite increased efforts.

Study Finds Significant Financial Burden in Patients with Metastatic Breast Cancer

12/11/14

Data presented at the San Antonio Breast Cancer Symposium identifies patient challenges.

Non-adherence to Medication Doubles when Patients have Depression Risk and Financial Burden

12/7/14

Poster at the American Society of Hematology Annual Meeting reveals correlation between finances, distress and treatment adherence.

Patients with Multiple Myeloma Feel Unprepared to Make Treatment Decisions

12/7/14

Data presented at the American Society of Hematology Annual Meeting reveals gaps in treatment decision support.

Integrated Distress Screening Shown to Decrease Distress in Patients with Multiple Myeloma

12/6/14

Poster at American Society of Hematology Annual Meeting Highlights results of proactive patient assessment.

As Open Enrollment Begins, Cancer Insurance Checklist is Updated to Help Patients Choose Health Insurance

11/12/2014

The Cancer Support Community and Partnering Organizations launch newly updated tool to help patients navigate health insurance marketplaces.

The Costs of Cancer Remain High, Yet Patients Are Not Prepared to Discuss Treatment Options

10/22/14

The Cancer Experience Registry identifies needs of people living with cancer.

The Cancer Support Community and Elaine Turner® Launch Partnership to Promote Healing Through Emotional Support

10/1/14

The Houston-based brand Elaine Turner® will launch its breast cancer awareness campaign, October 1, with a capsule collection donating a percentage of proceeds for each item sold to benefit CSC during the month of October.

New Campaign Aims to “Shine the Light” on Rare Cancers

8/25/14

The Cancer Support Community to raise awareness of Myeloproliferative Neoplasms with September events.

Leveraging the Immune System to Control Cancer

8/13/14

The Cancer Support Community launches Frankly Speaking About Cancer: Your Immune System and Cancer Treatment.

Low-Income Cancer Patients are More Likely to Seek Social and Emotional Support from Health Care Team, Study Suggests

5/30/14

The Cancer Support Community presents findings from a community-based distress screening program at annual meeting of American Society of Clinical Oncology (ASCO).

Transforming the Cancer Patient Experience: A Key Priority

5/28/14

Long-time friend and supporter of CSC, Raj Mantena, has agreed to match gifts from individual donors to transform the experience of patients and families as they move through the cancer journey.

Nearly Half of All Patients with Cancer Experience Significant Levels of Social and Emotional Distress

3/13/14

The Cancer Support Community delivers enhanced CancerSupportSourceSM distress screening program; presents findings at annual meeting of the National Comprehensive Cancer Network (NCCN).

3,7 Millones de Hispanoparlantes en Los Estados Unidos No Están Asegurados: Un Nuevo Recurso Permitirá a Las Personas Hispanas Y Latinas Con Cáncer Explorar Los Mercados De Seguros Médicos

1/30/14

Guía de Cobertura Médica para Personas con Cáncer ahora disponible en Español.

3.7 Million Spanish Speakers in U.S. are Without Insurance: New Resource Will Help Hispanics and Latinos with Cancer Navigate Health Insurance

1/30/14

Cancer Insurance Checklist released in Spanish.

Number of Cancer Survivors to Soar by 2020 with up to One-Half of all Cancer Survivors Experiencing Social or Emotional Distress

1/23/14

The Cancer Support Community introduces Patient Planning Services, Inc. to meet the growing demand for patient-centered care.

The Cancer Support Community and UF Health Cancer Center at Orlando Health Join Forces as Number of Cancer Survivors to Top 18 Million

1/14/14

The Cancer Support Community announces new partnership to deliver evidence-based social and emotional support services to thousands in Florida touched by cancer.

2013 Press Releases

Sara Goldberger, Cancer Support Community's Senior Director of Program, Recognized as MPN Hero

12/9/13

CURE magazine recognized the Cancer Support Community’s Sara Goldberger, LCSW-R, as an MPN Hero at an event prior to the American Society of Hematology’s annual meeting in New Orleans.

Chronic Myeloid Leukemia: Patient Experience Not Well Understood

10/24/13

The Cancer Support Community's Research and Training Institute and The Leukemia & Lymphoma Society (LLS) have joined forces to launch the Cancer Experience Registry: Chronic Myeloid Leukemia.

Shared Online Calendar Helps Communities Organize Meals for Families Coping with Breast Cancer

10/1/13

Eisai, CancerCare®, and Cancer Support Community Launch meal Trains sponsored by Magnolia™ During Breast Cancer Awareness Month; Campaign Aims to Drive 1,000 New meal Trains in October.

7 Million People to Use Health Insurance Marketplaces in 2014: Number Expected to Grow to 27 Million in Just Five Years

9/25/13

The Cancer Support Community and a group of 18 partnering cancer and patient advocacy organizations launched today the Cancer Insurance Checklist, a new resource to help people with cancer, a history of cancer or a risk of cancer choose insurance plans in the new state-based Health Insurance Marketplaces opening on October 1.

Half of All Patients with Multiple Myeloma Do Not Understand the Disease at Diagnosis

9/13/2013

The Cancer Support Community announced today the launch of Frankly Speaking About Cancer: Multiple Myeloma to address the educational needs of patients diagnosed and living with this rare form of blood cancer, as well as their caregivers.

Magnolia Meals at Home™ Expands in New Jersey

7/8/2013

The Eisai Women’s Oncology Program - MagnoliaTM, CancerCare®, Cancer Support CommunitySM and Meals On Wheels Association of AmericaTM are working together to help ease the stress of those living with breast cancer in New Jersey.

Expanded Experience Registry Created for People Living With Multiple Myeloma

6/27/2013

The Cancer Support Community’s Research and Training Institute has added a focus on people living with multiple myeloma to its nationwide Registry. According to the National Cancer Institute, there will be 22,350 new cases of multiple myeloma diagnosed in the U.S. this year. This type of blood cancer occurs most frequently in men and the risk of developing it increases with age. Also, multiple myeloma impacts African-Americans twice as much as other populations. The combinations of these demographics make it much more challenging to understand the entire physical, social and emotional spectrum of this disease.

Keeping the Promise - Cancer Care for the Whole Patient

6/19/2013

The Cancer Support Community to launch Cancer Policy Institute today. This inaugural event, held at the Newseum, will feature a keynote address by Ezekiel Emanuel, MD, PhD, recognition of Congress members who have made a significant impact on cancer issues, and the voice of patients and families currently engaged in the cancer journey.

Cancer Support Helpline Expands to Live Chat

6/10/2013

The Cancer Support Community announced today an expansion of its signature toll-free Cancer Support Helpline services to include an online live chat feature.

CSC Builds Executive Leadership Team

5/28/2013

Gwen Darien joined The Cancer Support Community in May 2013 as Executive Vice President of Programs and Services where she oversees research, programs, education, and patient and family services. Gwen brings nearly 20 years of experience with extensive communications, education and policy experience.

CSC Launches Toolkit to Help Navigate Cancer Cost

4/2/2013

A recent survey conducted by the Cancer Support Community® (CSC) revealed a majority (72.8%) of cancer patients experienced some degree of emotional distress from managing the cost associated with their cancer care. Additionally, 64.8% reported having no discussion with their health care team about the financial aspects of care. To help meet the needs of the growing population of people impacted by the financial burden of cancer care, the Cancer Support Community released the fourth edition of its highly acclaimed Frankly Speaking About Cancer®: Coping with the Cost of Care. Frankly Speaking About Cancer: Coping with the Cost of Care is presented in partnership with the Association of Oncology Social Work, Cancer and Careers, Cancer Legal Resource Center, LIVESTRONG, National Coalition for Cancer Survivorship, Patient Access Network, Patient Advocate Foundation and Survivorship A – Z.

Cancer Research Movement to Identify Social and Emotional Needs

3/21/2013

The Cancer Support Community’s Research and Training Institute launched a nationwide registry today that will help researchers better understand the impact of cancer on people who have or have had this disease.

CSC Data Shows Positive Results Following for Cancer-Related Distress

3/15/2013

The Research and Training Institute of the Cancer Support CommunitySM (CSC) released data today showing a significant decrease in emotional distress for people living with cancer who are screened with CSC's distress screening program, CancerSupportSourceSM, and are linked to personalized resources.

CSC Launches FSAC Lung Cancer 6th Edition

1/22/2013

More people in the United States die from lung cancer than any other type of cancer. To ensure people with lung cancer, their caregivers and loved ones are equipped with the most up-to-date information on treatment options and available resources, the Cancer Support Community has released its sixth edition of Frankly Speaking About Cancer: Lung Cancer®.