Participate in Research Studies

The Cancer Support Community's Research and Training Institute (RTI) conducts research to answer critical questions about the emotional and social impact of a cancer diagnosis.

Research at the RTI includes:

  • Interviews
  • Focus Groups (in person and online)
  • Surveys
  • Patient Powered Registry

By participating in studies conducted by the Research and Training Institute, you are helping to:

  • Determine the needs of cancer patients and caregivers across the trajectory of care
  • Develop programs and resources that meet the needs of cancer patients and caregivers
  • Implement quality programs and resources throughout our community network

Current Opportunities from the Cancer Support Community

Cancer Experience Registry – If sharing your cancer journey could enhance the lives of others, would you help?  You can!  The Cancer Experience Registry is an online initiative to learn and raise awareness about the social and emotional impact of a cancer diagnosis.  Join today at

Open to Options - In Cancer Support Community’s novel decision support counseling program, Open to Options ™, a trained Open to Options Specialist meets with the patient either in person or by telephone to help the patient brainstorm a list of personalized question list related to the person’s situation, understanding of the disease and treatment options, and the patient’s goals for treatment.  Call our Cancer Support Helpline at 888-783-9355 or live chat with one of our counselors by clicking here for more information.

Other Research Opportunities

Impact of Medication Side Effects on Quality of Life – This anonymous survey will explore the symptom experience of people who take EGFRIs (epidermal growth factor inhibitors) as part of their cancer treatment and will explore the impact of symptoms and side effects on patient well-being and quality of life.  You may be eligible to participate in this study if you are currently receiving an EGFRI as part of your treatment plan.  To learn if you are eligible and to access the survey, please visit and click on STUDY PARTICIPATION.  For more information, please call Josie Howard-Ruben at 224-735-1118 or email  This study is being conducted as part of a doctoral nursing program at Loyola University in Chicago and has been reviewed by the IRB as exempt (204743).

Impact of Chemotherapy-Induced Hair Loss on Women – This anonymous survey seeks to understand the impact of chemotherapy induced alopecia (hair loss) on women’s psychosocial functioning (body image, self-esteem and quality of life) cross culturally. It also seeks to understand the various coping strategies that women utilize when dealing with cancer and hair loss. If you are a women over the age of 18, speak English, and have experienced hair loss, your response to these anonymous surveys on Qualtrics would be greatly appreciated, which can be completed in 15-20 minutes.  You can access the survey by visiting This study is being conducted as part of a doctoral program at the University of La Verne and has been reviewed by the IRB.

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