The Cancer Support Community’s vision to build the Institute is shaped by our expertise and strong track record in research and training. CSC has forged highly productive partnerships with distinguished academic, professional and governmental organizations. The overarching goals for the Research & Training Institute are:
- To conduct cutting-edge psychosocial, behavioral and survivorship research and provide a seamless flow of program delivery through education and training.
- To provide the most progressive psychosocial training for CSC’s staff and other healthcare professional in oncology; to encourage research activity to significantly increase access to support for cancer patients & caregivers.
- To apply and disseminate research findings into practice through training.
- To help physicians overcome barriers that they face when referring cancer patients and their families to psychosocial programs and services.
The Institute also performs research activity to explore the impact of psychosocial support, quality of life, access and barriers to care and treatment, doctor-patient communication, treatment decision making, adherence to treatment and lifestyle recommendations, and the cost-effectiveness of evidence-based approaches to care.
Given the increasing focus on the importance of putting research findings into practice, the Cancer Support Community’s Research & Training Institute helps to bridge the gap between psychosocial research and the spread of evidence-based interventions throughout the community-at-large, carried out through our training programs.
The research objectives for the Research and Training Institute are:
1. Align research with five key psychosocial domains identified in the Institute of Medicine’s report, Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs (November 2007). These psychosocial domains include:
- Understanding illness, treatments, and services
- Coping with emotions surrounding illness and treatment
- Managing illness and health
- Facilitating behavioral change to minimize disease impact
- Managing disruptions in work, school and family life
2. Initiate and participate in community-based research collaborations that are designed to improve quality of life and diminish the psychosocial burden of cancer on patients and families. This is accomplished through:
- “Original” research = conduct research to collect data on new research questions
- “Translational” research = transform scientific discoveries arising from scientific, clinical, or populations
studies into clinical applications: Applying research to best practices
3. Apply research in the development and dissemination of training programs both internally and externally.
4. Use research as evidence to fuel advocacy for psychosocial support for cancer patients, caregivers and survivors.