In early December, the Cancer Support Community’s Research and Training Institute hosted the second annual National Advisory Council meeting for The Cancer Survivor Registry: The Breast Cancer M.A.P (Mind Affects the Physical) Project
. The Advisory Council represents national leaders from the advocacy, research, clinical, pharmaceutical and academic community. Council members traveled to Philadelphia for two days to review preliminary findings from the M.A.P. Project
and provide counsel on next steps for communication in an Annual Index Report and strategic expansion and sustainability of the Registry.
The M.A.P. Project
is a unique, exciting initiative of the Institute. It was created to identify and address the social and emotional needs that accompany a breast cancer diagnosis. To date, more than 2,600 breast cancer survivors have joined the registry. Their insight into the breast cancer experience will help us to learn more about their survivorship needs at each stage of the cancer journey. These findings will be used to develop innovative ways to address the impact of breast cancer.
Nearly a quarter of all 2,600 registrants to date have discovered the M.A.P. Project
through the CSC network! The data collected from this registry will allow us to identify gaps in care, so that we may develop and disseminate effective programming to improve long-term quality of life. The Institute will continue to share outcomes from this meeting of experts and Registry findings as they become available.
For more information about the Institute and the M.A.P Project
, or to join the registry, visit www.breastcancerregistry.org