Framing Life with Lymphoma

September is Leukemia and Lymphoma Awareness Month, and on September 14th, the Cancer Support Community (CSC) announced the launch of Framing Life With Lymphoma, a national, research-based educational program designed to enhance lymphoma patient and physician communication. 

This program, led by the CSC with support from Cephalon, Inc., provides lymphoma patients with easy-to-use tip sheets outlining ways to approach each conversation with their healthcare team across the course of their cancer journey – from diagnosis through treatment.  The tip sheets were developed from the results from a national survey and a patient focus group. Some of the tips include:

  • Bring questions with you and write everything down
  • Engage your support network
  • Speak up
  • Have a 24/7 plan 
  •  Know your cancer – it’s unique
  • Understand your healthcare team and know your “team captain”


 (L-R) Kim Thiboldeaux, President and CEO, CSC; Dave Aspesi, Product Director, TREANDA, Cephalon Oncology and David Henry, MD, Hematologist/Oncologist, Clinical Professor of Medicine, Pennsylvania Hospital


The national program launch kicked off with 15 TV and radio interviews featuring Kim Thiboldeaux, President & CEO of the CSC and Dr. David Henry, MD, Hematologist/Oncologist, Clinical Professor of Medicine, Pennsylvania Hospital.  Both Kim Thiboldeaux and Dr. Henry spoke with stations across the country to spread the word about the program. Keep an eye out for coverage in your area!

CSC also aired a special episode of Frankly Speaking about Cancer on VoiceAmerica featuring this new program. Kim Thiboldeaux hosted Dr. Henry and lymphoma survivor and focus group participant, Jane Fretz. To listen to the show, visit

Be sure to check out and download the program’s tip sheets, results of the survey and other program information.  You also have the chance to share your thoughts on the program and its materials - just click on the “Share Your Thoughts” link on to complete a quick survey to help inform future materials.

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